| What is it? |
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Syndactyly refers to joined or "webbed" digits - in the hand, most often
this refers to adjacent fingers which are grown together. Syndactyly is
one of the most common variations on the basic growth pattern of the hand.
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There are many different forms of syndactyly.
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When the fingers are completely joined together, it is called "complete"
syndactyly.
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When the join involves only part of the sides of the fingers, it is referred
to as "incomplete" syndactyly.
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If the join between the fingers just involves the skin and flesh, it is
described as "simple" (although it certainly isn't).
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If the bones are joined together, it is called "complex" syndactyly.
| A narrow web space between two adjacent fingers is called "incomplete
simple syndactyly": |
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| Adjacent fingers which are joined out to the tips, but have separate
bones (and usually separate fingernails) are referred to as having "complete
simple syndactyly": |
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| Adjacent fingers which are completely joined, and have bones fused
together are described as having "complete complex syndactyly". In many
cases, when the end bones are joined together, so are the fingernails: |
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| What caused it? |
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Syndactyly occurs in the womb as a detour on the road to developing one
thumb and four separate fingers on the hand. In the womb, the new hand
starts out in the shape of a paddle, then splits into separate fingers.
Sometimes the fingers don't split apart enough, and webbed fingers result:
syndactyly. Sometimes a extra split forms and extra fingers result: polydactyly.
Syndactyly and polydactyly are about equally common disorders. Combinations
of both can occur as well - webbed extra fingers. Why does a child have
this? It is not due to anything the mother did during pregnancy -
it just happens. Sometimes these problems are in the genes and can be passed
down generation to generation, but many times there is simply no known
explanation.
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| What can you do to help? |
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The main decision is to decide whether or not to do anything for the problem.
Certain types of syndactyly are associated with other birth related problems
elsewhere in the body, and it is a good idea to have an evaluation for
this reason alone. Surgery for syndactyly is usually best done in the first
few years of life so that the look, feel and function of the corrected
hand is the most natural for the child.
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| What can a therapist do to help? |
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A hand therapist can help with some problems before and after surgery,
tailored to the individual problem and the temperament of the child. After
surgery to separate fingers, a therapist can provide a special silicone
rubber spacer, worn between the fingers while sleeping to help maintain
the new web space during the healing process.
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| What can a doctor do to help? |
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The main treatment of syndactyly is surgery to separate the joined parts
and more importantly to add skin to correct the fact that there usually
is not enough skin to go around two complete fingers.
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There are many, many ways to do this type of surgery, and the design of
the operation depends both on the features of the hand and the surgeon's
experience. There is no one right way to do this type of operation.
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Surgery is usually performed with zig zag cuts which cross back and forth
across the fingers. This is so that the scars do not interfere with growth
of the finger.
| To the right is one of the many possible plans for a syndactyly operation,
with cuts planned on the front and back sides of the fingers to be separated: |
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| These bottom two diagrams shows one way that the skin could be rearranged
with this plan, but skin grafts (shown in dark blue) were used on the sides
of each finger to make up for areas where there just wasn't enough skin
to start with: |
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Usually, skin is transferred from another part of the body as a skin graft,
but sometimes a skin flap is used, provides thicker cover.
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This is sometimes fairly complicated surgery, because there may be variations
in all of the structures of the digit which is kept - twisted bones, crooked
joints, missing or extra tendons, nerves, and blood vessels.
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Abnormalities in the fingers may be more obvious after surgery than before,
but with careful planning, a hand surgery specialist will attempt to anticipate
and correct these problems at the time of surgery.
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After surgery, it is usual to protect the hand in a large bandage for weeks
to months, depending on what is done. Surgery done in childhood may need
to be adjusted for growth with "touch up" surgery when the child is older.
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| How successful is treatment? |
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The goals of surgery are to improve the appearance of the hand and to prevent
progressive deformity from developing as the child grows. Surgery is generally
successful in both of these areas, largely correcting the appearance and
social stigmata of congenitalism.
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In many cases, surgery results in a greatly improved but not perfectly
normal appearance, and in some situations a normal appearance can not be
expected. For example, each of the joined fingers in the above diagram
is likely to be smaller than normal, and no amount of surgery will allow
them to "catch up" to a size they might have been if they were not originally
joined.
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Fortunately, unless there is something particularly eye-catching about
the hand, what people notice about another person's hand is not the appearance
of an individual finger, but how the person uses their hand. Hiding one's
hand actually draws attention to it, and if surgery allows the person to
use their hand in a natural, unselfconscious way, many small details will
go unnoticed.
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| What happens if you have no treatment? |
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Syndactyly does not generally pose any health risk, but if the thumb is
joined, or if the fingers are joined out toward their tips, they will grow
in a progressively worsening bend over time. Surgical treatment is more
likely to result in a satisfactory outcome if surgery is done in the first
few years of life to give the child the most ability to adapt and accommodate
to the changes in their hand. People are less likely to be satisfied with
surgery for polydactyly if surgery is delayed past early childhood.
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